The Coalition for Usher Syndrome Research is dedicated to helping families cope with Usher Syndrome while working diligently to find a cure. Our goal is simple: Provide hope to families with Usher Syndrome. Hope here comes in many forms, from the opportunity to connect with other families, to the ability to access the latest information from the world’s leading researchers, to the chance to directly participate in the search for a cure.
c/o The Decibels Foundation
1269 Main Street