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Beginning in late July, NIH will start introducing a new website experience designed to make it easier to find health information, research, funding opportunities, and other resources. During the transition, you may notice changes to navigation, page layouts, and where some information is located. Learn more in our Frequently Asked Questions.

National Organization for Rare Disorders (NORD)

Acts as a clearinghouse for information about rare disorders. Fosters networks between families with similar disorders. Educates the general public and medical profession about the existence, diagnosis, and treatment of rare disorders.

55 Kenosia Avenue
P.O. Box 1968
Danbury, Connecticut http://www.rarediseases.org

Last updated: December 10, 2024

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