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NIH Websites Are Changing

Beginning in late July, NIH will start introducing a new website experience designed to make it easier to find health information, research, funding opportunities, and other resources. During the transition, you may notice changes to navigation, page layouts, and where some information is located. Learn more in our Frequently Asked Questions.

VHL Alliance

The VHL Alliance (VHLA) is a 501c3 non-profit organization founded in 1993 by three families with VHL to share experiences, learn from one another, support one another, and help the doctors understand and treat VHL, and improve life for patients. Today, the VHL Alliance is the preeminent resource and clearinghouse of patients, caregivers, researchers, and the medical community. VHLA is connected with approximately 90% of all diagnosed VHL patients throughout the world.

Mission

The VHL Alliance (VHLA) is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

1208 VFW Parkway, Suite 303
Boston, Massachusetts http://www.vhl.org
617-277-5667

Last updated: October 23, 2019

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