Skip to content

Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.
The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.
Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.

Rare Diseases

If you or a loved one has a rare eye disease, keep this in mind: Even though the condition may be uncommon, you’re not alone. Hundreds of thousands of people in the United States are living with some type of rare eye disease right now.

And while most doctors may not know a lot about your condition, there are experts and organizations that do. They’re dedicated to helping people with all types of rare diseases — and their families too. Learn what they have to offer.

Find out more about your condition

Get help

Look into clinical trials and research programs

Last updated: December 4, 2024