If you or a loved one has a rare eye disease, keep this in mind: Even though the condition may be uncommon, you’re not alone. Hundreds of thousands of people in the United States are living with some type of rare eye disease right now.

And while most doctors may not know a lot about your condition, there are experts and organizations that do. They’re dedicated to helping people with all types of rare diseases — and their families too. Learn what they have to offer.

Find out more about your condition

Get help

Look into clinical trials and research programs

Last updated: August 12, 2019